Myrl Jeffcoat wisgroup_leader@yahoo.com

A few days back, one of the women on my newslist, had asked that I pose the question, "How many women with breast implants have developed MS?"

I sent out my original group of responses, but have now heard from even more of you. I continue to share with all of you, what I am receiving. The names have been changed to initials to protect privacy.

Thanks!
Myrl
http://www.webstarmagic.com/wisletter.htm

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HI Myrl,

Three women in our group have developed MS after breast implants. I think it is more than a co-incidence!

Hope all is well in your universe.

B

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Dear Myrl,

In reference to the post below, I wanted to let others know that there is a yahoogroup newsgroup regarding the link between MS and Breast Implants that S.L. and myself created and began posting to a few years ago to enable women to have access to the information we have found. Sandra has actually done the most work with posting and research, and has done a great job. It is called BiMS or Breast Implants_Multiple Sclerosis-Exploring the Link. We have had many inquiries over the years as to whether breast implantscan cause MS. We don't exactly have a poll or number to quote, but the number of inquiries have been large enough to make one seriously consider a link between the two. IF there is not a direct link to allof the MS criteria, then there has to be an atypical MS that is being caused, IMO.

Thanks for all of the work you continue to do. It is appreciated verymuch!

Wishing you the best,

L

**[note from Myrl]: Although an initial has been used for privacy here, those interested in making contact with this newsgroup can contact me, and I will see that you are put into communication.

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I was diagnosed with "MS-Like Syndrome" with neuropathy of the extremities and more than 20 lesions on the brain; before explantation I had one loss of vision in one eye for about 45 minutes, but have had no other occurence of that since then (7 years)... In the Dow settlement, I received no funds for this.

Thanks for all that you do, Myrl, and for the great site you maintain..

C

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Hi Myrl I just read the emails on MS I as you know was diagnosed with MS in 2000 by MRI and it took till 2001 to get a neurologist to definitely confirm MS. I also have no history in my family of any illness like this I seem to be the one as my dad says gets alot of illnesses since the breast implants.

I have 52 women who have MS on my breast Implant MS newsletter Lany and I do together so if any of the women want to get any info feel free to let them know about it.

Dow and the claims centre knows exactly how many women there is with ms. Dr. Melmed told me he had 15 to 20 patients who were diagnosed with MS and he told me a Dr. Sharpa ( radiologist) in texas was keeping track of MRI results of all implanted women who were being diagnosed with MS.

I also got ahold of NOW and asked them if the claims centre had any protection under the freedom of information act regarding being able to keep under raps the amount of women in each categorie for diseases, ruptures ect and they said no they are not exempt. I enquired to this a few months ago so we need to get that info through the information act.

Feel free to use my name no initials are necessary with my email to you.

Sandra

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Myrl,

Refresh my memory. Wasn't the high number of cases of MS a concern in the MDL and why that one researcher (Dr. Miller) with the FDA was collecting info? Chris may remember better than I do, but I am almost sure there were at least 5 cases of MS in the MDL. I do remember when I went to Houston to see Dr. Lewy that the MRI center told us they had discovered one or two cases of MS and that was in 1995. My symptoms are very similar to MS and my neurologist was concerned about it in 2000 when I was diagnosed with the seizures.

P

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S. L. is a Canadian breast implant activist who is very ill with MS. She has very real concerns about the disease levels and how those are being decided. Please read her letter and search your hearts to see what you can do to find answers. If you live near Houston, please seriously consider appearing at the depository and asking tough questions.

One thing that I personally believe is critical is to find out how many women we have in each disease category. This is the largest study of women with implants that has ever been done. Our records speak for themselves and can speak not only to the nation, but to the world.
P